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Website Survey - we need your input!

Posted by Karen Chelcun Schreiber On June - 2 - 2010

nsfc-logo 

No Stomach For Cancer is seeking your input as we create and continue to develop our new website. As an organization dedicated to raising awareness, delivering education, supporting research and offering support to those affected by stomach cancer, we need to know what our members and visitors want to get out of the website. We’d like to invite you to take a few minutes to complete a short survey. Your responses will help us determine how best to craft a website that will serve your needs.   

Follow this link to begin:   No Stomach For Cancer Website Survey  All survey responses are confidential

News

A story of hope: Elizabeth Lambert shares her family story

Posted by Karen Chelcun Schreiber On March - 11 - 2010

Elizabeth Lambert, a teacher and a member of the Board of Directors of No Stomach For Cancer, Inc., is dedicated to raising awareness and educating the public about diffuse stomach cancer.  Like many others, her family has been affected by a hereditary form of stomach cancer. 

Elizabeth’s family was featured in a January 22, 2010 episode of Chronicle about genetics which aired on WCVB Boston Channel 5 on January 22, 2010.  View the Walsh Family Stomach Cancer video on You Tube.

A story of hope: Family has stomachs removed to fight cancer, an article written by Aaron Nicodemus, appeared in the Worcester Telegram and Gazette, Worcester, MA on February 2, 2010.

Families, Genetics, News

Surviving Stomach Cancer

Posted by Karen Chelcun Schreiber On January - 13 - 2010

earlyshowWORKING TO RAISE AWARENESS CHELCUN FAMILY MEMBERS APPEAR IN CBS SEGMENT ABOUT HDGC

The Chelcun family was featured in a CBS video segment with the goal of raising awareness of Hereditary Diffuse Gastric Cancer syndrome (HDGC).  While it appears to be a story about the Chelcun family, the underlying story is that of families all throughout the world. Change the family name, the family size, the individuals, the city, the country, but the story remains the same.

You may view the video, titled Surviving Stomach Cancer, currently available on You Tube.

Awareness is critical. Lives can be saved. Be an educator by sharing this with others.

Front, News

TV New Zealand Close Up: The Kiwis who inspired a Grey’s plot

Posted by Karen Chelcun Schreiber On June - 14 - 2009

View an uplifting and interesting Close Up news broadcast about Hereditary Diffuse Gastric Cancer (HDGC) on TV New Zealand featuring Parry Guilford, the scientist who first identified HDGC and the CDH1 gene mutation that causes HDGC.  His discovery, only eleven years new, has been saving so many lives, including in the Chelcun family and many other families worldwide.  The Close Up includes interviews with the original families in whom HDGC was first identified.  We must find ways to fund the promising research that will ultimately lead to the prevention of this particular cancer as well as other related cancers.

Families, Fundraising, Genetics, HDGC, Hereditary Diffuse Gastric Cancer, News, Research

Hereditary Diffuse Gastric Cancer (HDGC): A Resource for You

Posted by Karen Chelcun Schreiber On June - 13 - 2009

HDGC...Now What?

Be sure to visit HDGC…Now What?

 

You, or someone close to you has been diagnosed with HDGC.  Now what?  The search is on, for information, for support, for encouragement.

  
We are committed to developing this network, a valuable source of credible and useful information.  Join our community of support for all of those touched by HDGC or other types of stomach cancer.  Your participation can be as little or as much as you desire.  You decide. Read the rest of this entry »

Education, Families, Fundraising, Gastrectomy, General, Genetics, Get Involved, HDGC, Hereditary Diffuse Gastric Cancer, Lobular Breast Cancer, Mind, Body, Spirit, News, Nutrition, Pregnancy, Research

Kia Kaha

Posted by Karen Chelcun Schreiber On March - 21 - 2009

By Ryan Gay
Kernersville News, NC
March 2009
lisa-foster-england

The stomach is an organ many people take for granted, not really thinking about how much it helps the body. Except in instances of allergies or diets we don’t really have to concern ourselves with what we eat or when we eat.

There is simply a familiar pang in our abdomen that tells us our body needs to eat.

For one local woman, keeping her body fueled is not that easy.

Due to a genetic mutation that caused two stomach cancers, Lisa Foster England had to have her stomach removed.

Just over a decade ago, a scientist in New Zealand was studying an aboriginal people known as the Maori and discovered a mutation that greatly increases the risk of a deadly stomach cancer that is hard to detect.

The official name of the gene is cadherin 1, type 1, E-cadherin (epithelial), more commonly known as CDH1. Read the rest of this entry »

Families, Genetics, News

Lily’s Cookies

Posted by Karen Chelcun Schreiber On March - 14 - 2009

lily-cookieslily-gregMy name is Lily and I’m in 4th grade. I would like to tell you about my cookie project. I wanted to help with stomach cancer research after I heard that our family friend, Mr. Greg, had stomach cancer. My mom and I thought of ways to help. Then I came up with an idea, “Since I make fabulous homemade chocolate chip cookies, maybe I could make people a dozen cookies in exchange for a ten dollar donation to the Chelcun Family Stomach Cancer Foundation?” So far I’ve raised $410 dollars for the foundation. My plan is to keep making cookies as long as there is stomach cancer. By the way Kia Kaha means “Be strong hearted” which is the motto for the foundation.

Someone You Should Know: Lily Beyer Article & Video
January 2009

Fundraising, News

No Stomach For Food - Or Cancer

Posted by Karen Chelcun Schreiber On March - 8 - 2009

By David Wahlberg
Wisconsin State Journal
March 2009

Karen and Sons

She never gets hungry. Regular meals make her sick. She can’t eat and drink at the same time.

Karen Chelcun Schreiber has no stomach.

It’s not that her stomach is mostly bypassed like after weight-loss surgery. She has no stomach at all. She had the bean-shaped organ removed last summer.

Read the article in its entirety  . . .  No Stomach For Food - Or Cancer

Families, Genetics, News

Going Under the Knife to Head Off Cancer

Posted by Karen Chelcun Schreiber On March - 2 - 2009

By Radha Chitale
ABC News Medical Unit
March 2009

brian-greg

Prophylactic Surgery One Option for Those at Risk of Cancer

 

Few wouldn’t balk at the idea of prophylactic surgery — the removal a healthy organ or gland that shows no sign of cancer in order to prevent cancer from developing in that organ or gland.

 

Brian Chelcun with his father, Greg, in 2007. Brian had a prophylactic operation to remove his stomach two weeks ago, soon after his father died of stomach cancer on February 8th.

(WCVB)

In other words, prophylactic surgery involves cutting from the body a perfectly fine organ.

Or a ticking time bomb.

Or a perfectly fine organ.

And that is the dilemma facing a segment of the population who, due to family history, genetics or personal medical history, are saddled with a higher risk of cancer than the rest of the population and may have to take drastic steps to prevent a disease that kills over half a million Americans each year.

But Brian Chelcun, 26, never wavered for a moment.

“I was seeing my dad go through the effects of having stage IV stomach cancer,” said Brian, whose father died Feb. 8 of the disease. Chelcun was released from Massachusetts General Hospital in Boston last week after a gastrectomy to remove his stomach.

“Here’s a chance to avoid going through something that is so hard, and difficult to cure,” he said. Read the rest of this entry »

Families, Genetics, News

Erin’s Gift

Posted by Karen Chelcun Schreiber On February - 16 - 2009

Erin's Gift, Erin and her Mom“We Have to Stop Burying Our Children”

Saskatchewan, Canada.  The Lawrence Family found out the hard way; they inherited a genetic mutation (CDH1) from their ancestors.  The Sutherland Family has passed down this rare form of stomach cancer.  They have lost two young people to Hereditary Diffuse Gastric Cancer (HDGC).  The youngest member of the Lawrence family had a prophylactic gastrectomy at the age of 18, because he too inherited the CDH1 gene mutation.

They are reaching out to all relatives of the Sutherland Family Tree, trying to inform them of this genetic killer.  By sharing their story Mr. Lawrence hopes to save someone’s life.

Find the full story, which includes a CBC Radio interview series about Erin, Mr. Lawrence’s daughter, this courageous family, and their quest to identify other family members at risk at Erin’s Gift.
February 2009.

Families, Genetics, News

Striking first, surgically

Posted by admin On February - 15 - 2009

By Karen Garloch
The Charlotte Observer
February 15, 2009

At dinner recently, Ken Chelcun swallowed a bigger bite of his taco than he should have and suffered a little digestive distress.

“My food went down into my stomach too fast,” he explained to his family.

“But Dad,” said 8-year-old Dane, “you don’t have a stomach.”

It’s true. Read the rest of this entry »

Families, Genetics, News

SELF Magazine 2009 Health Handbook

Posted by Karen Chelcun Schreiber On February - 1 - 2009

Healthy days ahead!

Easy, effective ways to make the most of your unique DNA.

The February 2009 issue of Self Magazine includes a section titled 2009 Health Handbook which features information about Genetics and your health.  The handbook is divided into numerous articles on the Self Magazine website.  In the insert ”Family Clues To Live By”, Rachel Wick talks about stomach cancer and the CDH1 gene in her family.  February 2009

self-rachel

Families, Genetics, News
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    • Lorraine Ennis wrote on the wire of the group Lobular Breast Cancer   1 day, 20 hours ago

      Hi Nina……..great to see you here when we live only minutes apart and can’t seem to get together!!

      Just to let everyone know, when Nina said “Thanks Marge” she is referring to my sister who has spend a great deal of time, energy and efforts in educating our family about this gene…….if it wasn’t for her, [...]

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    • Karen Chelcun Schreiber wrote a new blog post: Scientific Advisory Board   1 week, 1 day ago

      Scientific Advisory Board members are highly accomplished professionals with medical and/or research background, who provide expert and comprehensive perspectives as well as guidance to No Stomach For Cancer, Inc. with regard to technical, medical, and research related topics. The Board provides knowledge and support that are critical in furthering our Mission.

       

      Daniel C. Chung, MD
      Clinical Chief, [...]

    • Nina healey wrote on the wire of the group Lobular Breast Cancer   1 week, 6 days ago

      I am new to this group. I am actually a cousin of Lorraine Ennis. In March 2007, I was diagnosed with Invasive Lobular Carcinoma in my right breast. I had a mastectomy in March, during which the dr checked the lymph nodes by removing the main node and checked it while I [...]

    • Nina healey joined the group Lobular Breast Cancer   1 week, 6 days ago