No Stomach for Cancer | Be Strong Hearted

A Network for Gastric Cancer Patients, Survivors and Families

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Archive for the ‘Get Involved’ Category

Great news about the Chelcun Family Fund For Stomach Cancer Research

Posted by Karen Chelcun Schreiber On September - 28 - 2009

The Chelcun Family Fund for Stomach Cancer Research has accomplished much, in a very short time. Our website is a leading resource (if not the leading resource) for information about HDGC and support for HDGC families worldwide. We are writing to bring you up to date on what’s been happening, and to announce a major step forward.

Our website at www.BeStrongHearted.org took off in a way none of us had anticipated. The statistics are astounding: visitors from 81 countries and every state in the United States; thousands of page views; families across the globe sharing their stories and connecting with others for support and information.

We’ve sparked a research study that will be led by Dr. Gregory Lauwers, a pathologist at Massachusetts General Hospital. Details about the study will be announced soon on our website. Read the rest of this entry »

Education, Families, Front, Fundraising, Get Involved, HDGC, Hereditary Diffuse Gastric Cancer

Facts about Stomach Cancer and Stomach Cancer Research Funding

Posted by Johanna Chelcun On June - 30 - 2009

By Johanna Chelcun, PA-C

 

Did you know…

 

…that Hereditary Diffuse Gastric Cancer (HDGC) is an inherited cancer syndrome that leads to an increased risk for diffuse gastric cancer (67-83% risk by age 80) and lobular breast cancer (20-40% risk for women by age 80.)

 

…that the American Cancer Society estimated that one million people worldwide would be diagnosed with stomach cancer in the year 2007, and that 800,000 would die from the disease? Read the rest of this entry »

Education, Front, Fundraising, Get Involved, HDGC, Hereditary Diffuse Gastric Cancer, Research

Hereditary Diffuse Gastric Cancer (HDGC): A Resource for You

Posted by Karen Chelcun Schreiber On June - 13 - 2009

HDGC...Now What?

Be sure to visit HDGC…Now What?

 

You, or someone close to you has been diagnosed with HDGC.  Now what?  The search is on, for information, for support, for encouragement.

  
We are committed to developing this network, a valuable source of credible and useful information.  Join our community of support for all of those touched by HDGC or other types of stomach cancer.  Your participation can be as little or as much as you desire.  You decide. Read the rest of this entry »

Education, Families, Fundraising, Gastrectomy, General, Genetics, Get Involved, HDGC, Hereditary Diffuse Gastric Cancer, Lobular Breast Cancer, Mind, Body, Spirit, News, Nutrition, Pregnancy, Research

Fleming’s Hosts Benefit Wine Tasting Event

Posted by Karen Chelcun Schreiber On May - 4 - 2009

flemings
Madison, WI

Dear Friends & Family,

I am thrilled to announce an event at Fleming’s Prime Steakhouse & Wine Bar in Madison, WI. The Fleming’s 100 Wine Tasting will benefit the Be Strong Hearted® campaign of our Chelcun Family Fund for Stomach Cancer Research.  The cost to attend is $25 per person, of which ninety-five percent will benefit the fund.

I would love to see you there, and I hope you will extend this invitation to others you know who may enjoy the event. A summer day will provide the perfect opportunity to take advantage of their lovely outdoor patio area, too.

We extend much gratitude to Andy Tsigolis, the Operating Partner of Fleming’s Madison, for his generous support of our cause.

Kia Kaha,

Karen 

www.BeStrongHearted.org continues to reach people worldwide who are just beginning to learn about hereditary gastric cancer. Affected families have expressed their thanks for our mission. Research is proceeding with wonderful personal contacts and commitments from key scientists. The scientists have shared their appreciation for our awareness and education efforts, and have said that “if you are having contacts from people around the world [and we are], then you are saving lives.” We appreciate your support, as it allows us to support and advance this very important research.

Visit Fleming’s Madison.

Front, Fundraising, Get Involved

Erin’s Gift Family Forum Notice

Posted by Karen Chelcun Schreiber On March - 12 - 2009

Notice from Erin’s Gift regarding a Family Forum in Canada:

Add your name to the list of parties interested in attending a HDGC Family Forum. Plans are tentatively in the works for a forum in Vancouver, British Columbia, Canada for families affected by HDGC to be held within the next 3-5 years. The forum will include guest speakers such as Dr. David Huntsman. Please add your name to the contact list if you wish to receive further information as it develops.
March 2009

Families, Get Involved, Notices
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    • Lorraine Ennis wrote on the wire of the group Lobular Breast Cancer   1 day, 20 hours ago

      Hi Nina……..great to see you here when we live only minutes apart and can’t seem to get together!!

      Just to let everyone know, when Nina said “Thanks Marge” she is referring to my sister who has spend a great deal of time, energy and efforts in educating our family about this gene…….if it wasn’t for her, [...]

    • J Wielgoszinski updated the “Basic” information on their profile   1 week, 1 day ago

    • J Wielgoszinski updated the “Cancer Profile” information on their profile   1 week, 1 day ago

    • J Wielgoszinski updated the “Bio” information on their profile   1 week, 1 day ago

    • Karen Chelcun Schreiber wrote a new blog post: Scientific Advisory Board   1 week, 1 day ago

      Scientific Advisory Board members are highly accomplished professionals with medical and/or research background, who provide expert and comprehensive perspectives as well as guidance to No Stomach For Cancer, Inc. with regard to technical, medical, and research related topics. The Board provides knowledge and support that are critical in furthering our Mission.

       

      Daniel C. Chung, MD
      Clinical Chief, [...]

    • Nina healey wrote on the wire of the group Lobular Breast Cancer   1 week, 6 days ago

      I am new to this group. I am actually a cousin of Lorraine Ennis. In March 2007, I was diagnosed with Invasive Lobular Carcinoma in my right breast. I had a mastectomy in March, during which the dr checked the lymph nodes by removing the main node and checked it while I [...]

    • Nina healey joined the group Lobular Breast Cancer   1 week, 6 days ago