Be Strong Hearted ®
By Johanna Chelcun, PA-C
Did you know…
…that Hereditary Diffuse Gastric Cancer (HDGC) is an inherited cancer syndrome that leads to an increased risk for diffuse gastric cancer (67-83% risk by age 80) and lobular breast cancer (20-40% risk for women by age 80.)
…that the American Cancer Society estimated that one million people worldwide would be diagnosed with stomach cancer in the year 2007, and that 800,000 would die from the disease? Read the rest of this entry »
View an uplifting and interesting Close Up news broadcast about Hereditary Diffuse Gastric Cancer (HDGC) on TV New Zealand featuring Parry Guilford, the scientist who first identified HDGC and the CDH1 gene mutation that causes HDGC. His discovery, only eleven years new, has been saving so many lives, including in the Chelcun family and many other families worldwide. The Close Up includes interviews with the original families in whom HDGC was first identified. We must find ways to fund the promising research that will ultimately lead to the prevention of this particular cancer as well as other related cancers.
Be sure to visit HDGC…Now What?
You, or someone close to you has been diagnosed with HDGC. Now what? The search is on, for information, for support, for encouragement.
We are committed to developing this network, a valuable source of credible and useful information. Join our community of support for all of those touched by HDGC or other types of stomach cancer. Your participation can be as little or as much as you desire. You decide. Read the rest of this entry »
Madison, WI
Dear Friends & Family,
I am thrilled to announce an event at Fleming’s Prime Steakhouse & Wine Bar in Madison, WI. The Fleming’s 100 Wine Tasting will benefit the Be Strong Hearted® campaign of our Chelcun Family Fund for Stomach Cancer Research. The cost to attend is $25 per person, of which ninety-five percent will benefit the fund.
I would love to see you there, and I hope you will extend this invitation to others you know who may enjoy the event. A summer day will provide the perfect opportunity to take advantage of their lovely outdoor patio area, too.
We extend much gratitude to Andy Tsigolis, the Operating Partner of Fleming’s Madison, for his generous support of our cause.
Kia Kaha,
Karen
www.BeStrongHearted.org continues to reach people worldwide who are just beginning to learn about hereditary gastric cancer. Affected families have expressed their thanks for our mission. Research is proceeding with wonderful personal contacts and commitments from key scientists. The scientists have shared their appreciation for our awareness and education efforts, and have said that “if you are having contacts from people around the world [and we are], then you are saving lives.” We appreciate your support, as it allows us to support and advance this very important research.
Visit Fleming’s Madison.
My name is Lily and I’m in 4th grade. I would like to tell you about my cookie project. I wanted to help with stomach cancer research after I heard that our family friend, Mr. Greg, had stomach cancer. My mom and I thought of ways to help. Then I came up with an idea, “Since I make fabulous homemade chocolate chip cookies, maybe I could make people a dozen cookies in exchange for a ten dollar donation to the Chelcun Family Stomach Cancer Foundation?” So far I’ve raised $410 dollars for the foundation. My plan is to keep making cookies as long as there is stomach cancer. By the way Kia Kaha means “Be strong hearted” which is the motto for the foundation.
Someone You Should Know: Lily Beyer Article & Video
January 2009
Support one another through individual connections and group participation. Create your own journal/blog to share your story with others.
J Wielgoszinski updated the “Basic” information on their profile 3 days, 15 hours ago
J Wielgoszinski updated the “Cancer Profile” information on their profile 3 days, 15 hours ago
J Wielgoszinski updated the “Bio” information on their profile 3 days, 15 hours ago
Karen Chelcun Schreiber wrote a new blog post: Scientific Advisory Board 3 days, 21 hours ago
Scientific Advisory Board members are highly accomplished professionals with medical and/or research background, who provide expert and comprehensive perspectives as well as guidance to No Stomach For Cancer, Inc. with regard to technical, medical, and research related topics. The Board provides knowledge and support that are critical in furthering our Mission.Daniel C. Chung, MD
Massachusetts General [...]
Nina healey wrote on the wire of the group Lobular Breast Cancer 1 week, 1 day ago
I am new to this group. I am actually a cousin of Lorraine Ennis. In March 2007, I was diagnosed with Invasive Lobular Carcinoma in my right breast. I had a mastectomy in March, during which the dr checked the lymph nodes by removing the main node and checked it while I [...]
Nina healey joined the group Lobular Breast Cancer 1 week, 1 day ago
Gretchen Borzi wrote on the wire of the group Lobular Breast Cancer 3 weeks, 2 days ago
Lorraine and Cathy, you’re stories are inspiring. I wish you both the best of luck with your surgeries and recovery. Right now, it’s hard for me to imagine being in your shoes, but I will most likely be there at some point. Thanks for sharing.
