Knowledge gives you power … Sharing gives you strength
Contact Us to share your personal story.
I am Megan McFetridge, a medical assistant working for Bryn Mawr Rehab in Malvern, Pa. since sep 2007. Working with stroke and brain injury patients has taught me to treasure my health and never take life for granted. In November of 2007, after my older sister (28) was diagnosed with HDGC, I found out I had the same CDH1 gene mutation that we inherited from our mom (Jeannie Marie McFetridge 4/16/60-2/23/03). This spring, I decided to get the prophalactic TG, and my surgery is scheduled for September 28, 2009. This is my Story.
Allison Levine (Ali) was diagnosed on April 10, 2008 with signet ring cell carcinoma (gastric cancer). Ali ended her courageous battle victorious on Monday, March 9, 2009 at the tender age of 32. Her journal & inspirational comments of visitors are a testament to her extraordinary character (Kia Kaha) & compassion. Shortly after her passing, we discovered results of genetic testing revealed a mutation of the CDH1 gene. Our family now enters a new phase of this journey to determine additional genetic results of Ali’s parents, sister (her daughter if necessary) and eventually - our nearly 3 year old son Noah.
March 2009
Bethany Tucker’s Story.
March 2009
Lisa Foster England’s blog, Thriving…Not Just Surviving.
WXII 12 TV Winston-Salem NC article and video “Local Woman Beats Stomach Cancer” features Lisa Foster England (Bethany’s mom).
April 2009
Chad Sapieha’s blog, Gutless’s Posterous. Chad had his total gastrectomy on March 2, 2009. He lives in Toronto, Ontario.
March 2009
Brian Chelcun’s journey through total gastrectomy at the age of 26. Brian lives in Washington DC.February 2009
Late math teacher leaves behind legacy at SPASH, about Brian’s father, Greg Chelcun, who passed away on February 8, 2009 due to HDGC. Stevens Point, WI.
February 2009
In three years’ time (2001-2004), Rose Evans witnessed the deaths of four family members. They all had had stomach cancer. Genetic testing revealed that all four — her father, her sister, and two of her aunts (her fathers’ sisters) — had a mutation of the CDH1 gene. In 1960, her paternal grandmother had also died from stomach cancer at the age of 57. After Rose tested positive for the gene in 2006 (at the age of 42), she was the first person in her family to have her stomach removed to prevent diffuse gastric cancer. Rose shares her story In the genes … or how to beat the odds (part deux).
Karen Chelcun’s journey through total gastrectomy at the age of 51. Karen lives in Madison, WI.
September 2008
WKOW TV Madison, WI article and video “Family Battles Rare Stomach Cancer” about the Karen Chelcun Family.
March 2009
The Boston Channel article and video “Family Battles Rare Stomach Cancer” about the Ken Chelcun Family.
December 2008
The Boston Channel video “Family Members Choose Radical Surgery To Beat Cancer” about the Lambert Family.
July 2008
