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Archive for January, 2010

Increased Risk of Colon Cancer in HDGC Patients

Posted by Karen Chelcun Schreiber On January - 30 - 2010

The following is an excerpt from the as yet unpublished Cambridge meeting. The paper has just been accepted by the Journal of Medical Genetics and will be published early in the new year.

“There is also emerging evidence for an increased risk of colon cancer in HDGC families, and these colon cancers can display signet ring cell features (personal communications David Huntsman and Paul Pharoah). In CDH1 families in which colon cancer is reported information should be collected concerning the age at diagnosis, whether the affected member(s) are first or second degree relatives and whether the pathology was mucinous or showed signet ring cells. Depending on these factors enhanced screening should be considered with colonoscopy beginning at age 40 or 10 years younger than the youngest diagnosis of colon cancer, whichever is younger, and repeated at intervals of 3-5 years. It is imperative that data on colonoscopic screening in these individuals is collated so that these guidelines can be evidenced based in the future”.

Fitzgerald et al (2010) J.Med. Genet. in press.

Know your family history. Be proactive. Talk to your doctor about the health screenings that are appropriate for you.

Hereditary Diffuse Gastric Cancer (HDGC)

Posted by Karen Chelcun Schreiber On January - 29 - 2010

Gastric cancer is the second most common cause of cancer-related death in the world.

The American Cancer Society estimated that 21,500 new cases of stomach (gastric) cancer would be diagnosed in the United States in 2008.1 Because gastric cancer is difficult to diagnose, it is often discovered in patients at a late stage with a poor prognosis. The treatment for gastric cancer is surgery and chemotherapy;2 however, the overall 5-year survival rate is low, at 24.3%.1

It is estimated that 1-3% of cases of gastric cancer are caused by Hereditary Diffuse Gastric Cancer.2 Hereditary diffuse gastric cancer (HDGC) is an inherited cancer syndrome that leads to an increased risk for both diffuse gastric cancer and lobular breast cancer in women. Patients who inherit the genetic mutation for HDGC are at high risk for developing gastric cancer at a young age.3 Read the rest of this entry »

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    • Karen Chelcun Schreiber wrote on Cathy O’s wire:   1 hour, 40 minutes ago

      I’m thinking of you Cathy and sending positive energy your way. Good luck to you! Keep writing, let us know how you are progressing. Lots of questions come up after TG - post them! We’re all out here, ready to help in any way we can.

    • Cathy O wrote on their own wire:   5 hours, 23 minutes ago

      Tomorrow is the big G day. I have been wined and dined, and tead and lunched. Haven’t gained any significant weight though, food in equals food out for me.
      I am pretty calm about the surgery. Thank you to this site for all of the information. There IS life after gastrectomy and [...]

    • Karen Chelcun Schreiber wrote a new blog post: A story of hope: Elizabeth Lambert shares her family story   12 hours, 29 minutes ago

      Elizabeth Lambert, a teacher and a member of the Board of Directors of No Stomach For Cancer, Inc., is dedicated to raising awareness and educating the public about diffuse stomach cancer.  Like many others, her family has been affected by a hereditary form of stomach cancer. 

      The Chronicle aired a program about genetics on January 22, [...]

    • Tammy Ayson wrote on Cecily Wilson Guiney’s wire:   2 days, 3 hours ago

      Thank you so much for your message Cecily. I think it is just amazing that we can ‘chat’ to others just like ourselves, even if we are oceans apart. I still feel amazed at how well my recovery has gone thus far and it is just lovely to read other personal stories that reassure me [...]

    • Tammy Ayson and Cecily Wilson Guiney are now friends   2 days, 3 hours ago

    • Chris and Cecily Wilson Guiney are now friends   4 days, 11 hours ago

    • Chris updated the “Bio” information on their profile   4 days, 16 hours ago

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