No Stomach for Cancer | Be Strong Hearted

A Network for Gastric Cancer Patients, Survivors and Families

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Surviving Stomach Cancer

WORKING TO RAISE AWARENESS CHELCUN FAMILY MEMBERS APPEAR IN CBS SEGMENT ABOUT HDGC
The Chelcun family was featured in a CBS video segment with the goal of raising awareness of Hereditary Diffuse Gastric Cancer syndrome (HDGC).  While it appears to be a story about the Chelcun family, the underlying story is that of families all throughout the [...]

TV New Zealand Close Up: The Kiwis who inspired a Grey’s plot

View an uplifting and interesting Close Up news broadcast about Hereditary Diffuse Gastric Cancer (HDGC) on TV New Zealand featuring Parry Guilford, the scientist who first identified HDGC and the CDH1 gene mutation that causes HDGC.  His discovery, only eleven years new, has been saving so many lives, including in the Chelcun family and many other families worldwide.  [...]

Hereditary Diffuse Gastric Cancer (HDGC): A Resource for You

Be sure to visit HDGC…Now What?
 
You, or someone close to you has been diagnosed with HDGC.  Now what?  The search is on, for information, for support, for encouragement.
  
We are committed to developing this network, a valuable source of credible and useful information.  Join our community of support for all of those touched by HDGC or other [...]

Kia Kaha

By Ryan Gay
Kernersville News, NC
March 2009

The stomach is an organ many people take for granted, not really thinking about how much it helps the body. Except in instances of allergies or diets we don’t really have to concern ourselves with what we eat or when we eat.
There is simply a familiar pang in our [...]

Lily’s Cookies

My name is Lily and I’m in 4th grade. I would like to tell you about my cookie project. I wanted to help with stomach cancer research after I heard that our family friend, Mr. Greg, had stomach cancer. My mom and I thought of ways to help. Then I came up with an idea, [...]

No Stomach For Food - Or Cancer

By David Wahlberg
Wisconsin State Journal
March 2009

She never gets hungry. Regular meals make her sick. She can’t eat and drink at the same time.
Karen Chelcun Schreiber has no stomach.
It’s not that her stomach is mostly bypassed like after weight-loss surgery. She has no stomach at all. She had the bean-shaped organ removed last summer.
Read the article [...]

Going Under the Knife to Head Off Cancer

By Radha Chitale
ABC News Medical Unit
March 2009

Prophylactic Surgery One Option for Those at Risk of Cancer
 
Few wouldn’t balk at the idea of prophylactic surgery — the removal a healthy organ or gland that shows no sign of cancer in order to prevent cancer from developing in that organ or gland.
 
Brian Chelcun with his father, Greg, [...]

Erin’s Gift

“We Have to Stop Burying Our Children”

Saskatchewan, Canada.  The Lawrence Family found out the hard way; they inherited a genetic mutation (CDH1) from their ancestors.  The Sutherland Family has passed down this rare form of stomach cancer.  They have lost two young people to Hereditary Diffuse Gastric Cancer (HDGC).  The youngest member of the Lawrence [...]

Striking first, surgically

By Karen Garloch
The Charlotte Observer
February 15, 2009

At dinner recently, Ken Chelcun swallowed a bigger bite of his taco than he should have and suffered a little digestive distress.
“My food went down into my stomach too fast,” he explained to his family.
“But Dad,” said 8-year-old Dane, “you don’t have a stomach.”
It’s true.

SELF Magazine 2009 Health Handbook

Healthy days ahead!
Easy, effective ways to make the most of your unique DNA.
The February 2009 issue of Self Magazine includes a section titled 2009 Health Handbook which features information about Genetics and your health.  The handbook is divided into numerous articles on the Self Magazine website.  In the insert ”Family Clues To Live By”, Rachel Wick talks about stomach [...]

When courage is the cure

By Stephen Smith
Boston Globe
October 2008

Her mother died from stomach cancer at the age of 52.
Her brother was stricken with the same disease at 56.
Bad luck or bad genes, Karen Chelcun Schreiber wondered.
A blood test gave her the answer:
She carried an inherited gene that made it likely that someday she, too, would develop a form of [...]

Genes, cancer are ties that bind

By Judith Graham
Tribune staff reporter
December 2007
 
Five months before she died of a rare form of stomach cancer, Sandra McNamara uncovered a devastating family legacy.
Her illness was closely linked to a genetic mutation. She had it, and that meant her three sisters and their children might have it too.
McNamara picked up the phone and started calling [...]

The possibility of having a healthy pregnancy and maintaining one’s own health is an issue that comes up again and again for young women who are affected by Hereditary Diffuse Gastric Cancer (HDGC) and are contemplating prophylactic total gastrectomy.  Pardeep Kaurah provides the following report titled “Pregnancy after prophylactic total gastrectomy,”  which was just published in January, 2010. Pregnancy after prophylactic total gastrectomy  Read More →

The following is an excerpt from the as yet unpublished Cambridge meeting. The paper has just been accepted by the Journal of Medical Genetics and will be published early in the new year. “There is also emerging evidence for an increased risk of colon cancer in HDGC families, and these colon cancers can display signet ring cell features (personal communications David Huntsman and Paul Pharoah). In CDH1 families in which colon cancer is reported information should be collected concerning the... more

Gastric cancer is the second most common cause of cancer-related death in the world. The American Cancer Society estimated that 21,500 new cases of stomach (gastric) cancer would be diagnosed in the United States in 2008.1 Because gastric cancer is difficult to diagnose, it is often discovered in patients at a late stage with a poor prognosis. The treatment for gastric cancer is surgery and chemotherapy;2 however, the overall 5-year survival rate is low, at 24.3%.1 It is estimated that 1-3% of cases... more

Watch the video about Mapping the Human Genome and Stomach Cancer. “Good Morning America” considers the discovery of genetic markers such as the one causing HDGC to be one of the top medical advances of the decade. Stomach cancer is mentioned specifically in this video from December 29, 2009 featuring Dr. Tim Johnson’s descriptions of medical breakthroughs. We are confident that the efforts of all of us impacted by HDGC and other diffuse gastric cancers, have already resulted in... more

A  prestigious James Cook Fellowship has been awarded to researcher Parry Guilford, University of Otazo, New Zealand, to pursue innovative research aimed at reversing or preventing the very early stages of stomach cancer. Read Parry Guilford’s personal post detailing his exciting research plan for HDGC / CDH1 gene research.  His two year fellowship will begin in March, 2010.   The University of Otago announces Parry Guilford’s exciting award for  stomach cancer research. More... more

Parry Guilford; Cancer Genetics Laboratory, University of Otago The James Cook Fellowship provides funding for two years of concentrated research, free of teaching and administrative commitments.  My planned research is built broadly around establishing methods to assess individual risk of developing gastric cancer.  As we all know, CDH1 mutation carriers have a lifetime risk of around 70-80% of developing diffuse gastric cancer, but we have little understanding of an individual’s actual... more

CDH1 Mutations and Inheritance By Amy Stettner, MS, CGC Genetic Counselor Madison, WI Our bodies are made up of trillions of tiny cells. We have skin cells, muscle cells, bone cells, stomach cells, etc. Each cell contains a copy of our genetic code. This genetic code is made up of DNA and is packaged into structures called chromosomes. more  Read More →

The Chelcun Family Fund for Stomach Cancer Research has accomplished much, in a very short time. Our website is a leading resource (if not the leading resource) for information about HDGC and support for HDGC families worldwide. We are writing to bring you up to date on what’s been happening, and to announce a major step forward. Our website at www.BeStrongHearted.org took off in a way none of us had anticipated. The statistics are astounding: visitors from 81 countries and every state in the... more

No Stomach For Cancer

No Stomach For Cancer, Inc. is a charitable organization whose mission is to expedite education and research for early diagnosis, screening, treatment and prevention of Hereditary Diffuse Gastric Cancer (HDGC) and other diffuse gastric cancers and their related health risks, and to provide a network of support for affected families. Read more about HDGC on the Gastric Cancer page of this website.

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